"Active Athletes/Military with MH"
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by: Javaun
on 2/1/2002 at 4:14:09 PM
Are there any athletes or military out there who can relate their experiences with MH under stressful conditions? I've always been very active in sports and recently turned to endurance events. I've certainly had leg cramps when running/cycling (as most athletes do) but have never had fibromyalgia (at least I don't think so.) I believe they administered Dantrolene to me in the OR, would that have prevented fibromyalgia? Wouldn't exercise have caused it by now? Maybe I haven't pushed myself hard enough, though I have run and mountain biked for dozens of miles in 100+ degree Georgia weather w/o having any problems.
I'm 27 and had an MH episode at age 9 back in 1984. I've never had the biopsy and always worn the bracelet and stayed far away from prohibited anesthetics.
But now I'm confronted with a new choice. I'm likely suspecptible to some degree. I won't bring it up at the physcial, but if they ask I won't lie about MH simply to join the military (that goes against my principles and against the principles or any unit I want to be a part of). However, when I say "maybe" to MH susceptibility, I'm worried they'll want a biopsy. Even if they do take me on waiver, the units I'm applying to are elite units that apply very often to remote areas.
I'd love to hear from anyone who can offer advice.
Thanks
by: Margie Bromen
on 2/6/2002 at 12:18:52 PM
by: shannon
on 9/12/2006 at 2:58:39 PM
love always shannon.
by: Laura
on 2/7/2002 at 3:54:53 AM
Dantrolene has nothing to do with fibromyalgia. Fibromyalgia is a chronic, non-fatal, non-progressive disease. Researchers are still not sure whether it is a neuromuscular disorder, a genetic disorder, an auto-immune disorder. Running and doing other competitive sports, would not break your body down, unless you were already pre-disposed in someway. Some,but not all of the factors that contribute to FMS are: physical trauma (i.e. auto accident), family members that have it, emotional stress/trauma, lupus(upto 55% of people with lupus may have fibromyalgia), and other illnesses may contribute. I have only found one study on Malignant Hyperthermia that is trying to find out whether or not MH and fibromyalgia and other types of chronic muscle pain disorders are connected.
However, I have read some reports on competitive runners having febrile seizures after running marathons, and were thought to possibly be MH reactions. People with MH or who are MH susceptible do appear to be prone to heat exhaustion, and should be careful of high fevers.
I am not a doctor, and all this information is either based on personal experience, or articles I have read throughout the years, merely trying to understand why I do have both, and why I found myself suddenly disabled at a young age, and why I do not tolerate temperature changes.
You should contact the MHAUS for more information on all your questions, but, I hope this helped you some.
by: Donald Horton
on 3/30/2002 at 9:00:00 PM
by: Laura M
on 6/6/2002 at 8:21:07 PM
As far as surgery goes, if a person does have fibromyalgia, surgery can certainly bring on a vicious flare. However, if you do not have fibromyalgia, I have never heard of anyone "getting" it from surgery, although any stressful, physical trauma or event can play a part in the onset of fibromyalgia. It is generally seen in families, but, that is not always the case.
I hope I have answered some of your questions.
By the way, I was in the National Guards for two years, and I have Malignant Hyperthermia. However, had they known that, I would have been discharged, as I was denied enlistment into the army in 1996. Good luck to you,
Sincerely,
Laura M.
by: Bruce
on 6/8/2002 at 12:14:45 AM
My advise, DO NOT EVEN THINK OF LYING TO THE RECRUITER!!!! It will come out. If you have been biopsied, the scar will tell the tale. If you go to raghead wastlands such as Saudi Arabia, you will be doing physical exersion in 120+ degree in the shade weather. You are more prone to heat injuries such as heat exhaustion and heat stroke. The military is wonderful to serve in but is not worth taking an unnecessary risk to your health/life by not disclosing you are MH positive. MH is in Army Regulation 40-501 which defines qualifications of induction, enlistment, and retention. It is a definate disqualifier for good reason. Field aid stations that the wounded are taken to are not equiped with Dantrolene. Being wounded would be a death sentence when you reach the Anestesiologist. My career has been cut short by 5 years. I will retire medically. I do not want to leave but I know it is in my best interest as well as the Army's.
by: Anne
on 7/4/2002 at 12:16:16 AM
by: Danielle
on 1/21/2006 at 9:28:09 PM
by: Eric
on 5/17/2006 at 9:32:27 PM
by: Dan Dixon
on 8/4/2006 at 6:41:50 AM
by: Steve
on 8/4/2006 at 8:22:33 AM
I know someone that is familiar w/ these military regulations...So, I'll see if I can get some info for you...check this message board often...(although, I'll be TDY the next week and unable to make posts)...I'll try to get some info for you, ASAP...
p.s., thanks for your military service.
Steve
by: Dan
on 8/4/2006 at 7:42:14 PM
I intended to make a comment regarding your PA's statement:
"He said they treat it like a high fever. Does that sound right? "
It is shameful that your P.A. would be soooo OBVIOUSLY ill-informed on this issue. He/she and his/her entire chain of command should be referred to this web page if they think it's just like a high fever. My apologies for the rantings...but I've had more than my share of negative experiences w/ PAs in military medicine....don't get me wrong I've also had some positive experiences w/ mil med...just not PAs in the mil med system.
QUESTION: Is your MH status documented in your medical record? If you’re interested, I have some 3" x 5" bright red stickers (from the MHAUS organization) that you can stick on the cover of your medical record. You will be your best advocate...If you'd like me to mail it to you...send me an e-mail at Shek5150@hotmail.com (don't forget to include a mailing address) and I'll send you a sticker (or two).
Anyway, take care and I'll post the military regulation information as soon as I receive it.
Best Wishes to you...
Steve
by: Dan Dixon
on 10/12/2006 at 4:43:10 PM
by: Steve
on 11/4/2006 at 5:54:45 PM
Here is the DOD Instruction 6130.4, "Medical Standards for Appointment, Enlistment, or Induction in the Armed Forces", 01/18/2005
SUMMARY: This Instruction reissues DOD Directive 6130.4, "Medical Standards for Appointment, Enlistment, or Induction in the Armed Forces," April 2, 2004 to implement policy and assign responsibilities for Medical Standards for Appointment, Enlistment, or Induction in the Armed Forces activities under DoD Directive 6130.3,"Physical Standards for Appointment, Enlistment, or Induction," December 15, 2000.
Hope it's helpful...
STeve
by: Lorie
on 2/14/2008 at 2:16:24 PM
Sorry this is so long but it caught my attention that they said they treat it just like a high fever!!
L
by: Maggie
on 10/29/2007 at 2:31:13 PM
I currently have have an allergy tag (malignant hyperthermia) with my dog tags and will soon be getting a new medic alert bracelet with updated information.,
Education and being informed is the key!
Wish you well and God bless!
Maggie
by: Robert Thomas
on 9/2/2002 at 6:53:34 PM
I hope I can provide some helpful advice. I had four general anethesia surgeries prior to enlisting in the United States Marine Corps in 1995. I attended boot camp, which was very physically challenging, and I had no problems whatsoever. I then went to Japan for 3yrs and 8 months with no problems. Upon returning to the states I was stationed in Quantico, Virginia and I began having cramps out of the blue all over my body for no reason. Not exercise related or during sleep only. I would be sitting somewhere talking and all of the sudden I would get a cramp somewhere on my body and it would last for a few minutes. My back muscles also began to weaken and get very sore after an activity. I saw the Navy doctors and they said the back pain was probably caused by the massive amount of situps we do as Marines and the cramps were normal. They gave me some stretching exercises and sent me on my way. They did not work. I then got hernia and went in Jan 02 to have it repaired. I had a MH episode on the table and the hernia was put off until last month along with a biopsy. Aug 02 I had the caffiene test and the results were off the charts. Dr. Muldoon, of the Navy Univeristy Medical Staff said of all the test she has ever performed she has never seen a reaction so high. She has even recommended that I always exercise in a cooled room and not march or exercise with my unit ever again. It is too much of a risk. There is also another disorder involved as there usually is with MH patients. The results will be back soon for that. If I were in your position, I would not join. I went through a lot of physical stress and made it through very easily and then one day I nearly lost my life. You would also be putting those men and women in uniform who are depending on you in danger. You service is greatly appreciated, but probably better used in other areas. Good Luck!!
by: sj
on 9/5/2002 at 7:17:33 PM
Or just suggest you not exercise in the heat?
by: Robert Thomas
on 11/14/2002 at 3:50:09 PM
by: Bruce
on 12/13/2002 at 10:12:15 PM
by: shannon
on 9/12/2006 at 2:59:48 PM
by: Travis
on 3/1/2006 at 4:49:17 PM
When i talked to dr. Muldoon she said that when CPK raises above 20,000 is when it is usually determaned that it is MH without further testing. the doctor said he determaned it to be MH and recommended a muscle bio. I never ended up getting one and we just always assumed i had MH.
Now with my hopes set high to join the airforce, i was turned down by the sergeon general while the doctor at meps recommened a medical waiver be approved. i had surgery since the reaction for my wisdom teeth and precautions were taken, and it went smoothly.
Now i am going through the steps to still persue a career in the airfoce, and the steps are all blind becuase my recruiters done know anything about getting around a DQ from the SG and said the best luck was your local congressman,
Now after reading more about my reaction and making some phone calls i think it is best to get a biopsy to see if i even have it, becuase i dont show the symptoms, my CPK didnt go highenough to acctually show i had it for sure, i have no history in the family at all with it, or any muscle problems. Im extremely athletic and active. I talked to a doctor in Washinton DC national childrens hospital and he said the chances of me having it are less then 50/50.with that being said i think there is enough reaason to look further into finding out if i have it so i can do what i want which is make a career in the AF.
Now i have to get the biopsy set up, which the doctor told me takes about 2 months to get the day in order, and the cost is around $8,000. my insurance would cover alot of it but not enough at my budget, so i and trying to talk to the local congressman here in western New York to get the operation done at a Military hospital where transportation would be the only cost, and also i want to get him involved in seeeing what he can do say the test comes out posatives where he can get me in the force but with combat resrictions which i would be content with considering i want to go in for technology and communications.
And if the test comes back negative i wonder how long it would take to get in the airforce because itll be a few months longer from this time when it gets resubmitted, and accepted, and also if the airforce will be stuck up about it saying i had the reaction so the muscle biopsy dosnt trumph that so u are still Disqualified, which that would be rediculous but who knows.
Well i was just posting this to see what everyone had to say concerning it and/or anyone has any steps or shortcuts i can take to make this process go alot faster and smother, opinios appriciated to.
Im 19 from Western NY. thank you
by: jonathan
on 4/18/2006 at 8:41:02 PM
by: Amber
on 5/18/2006 at 4:29:04 PM
by: Sarah
on 5/31/2006 at 7:39:23 AM
by: liz
on 6/12/2006 at 12:26:40 PM
by: Amanda
on 9/22/2006 at 12:04:54 AM
Also, I have been an athlete my whole life and never had any reaction like this before. I had 4 surgeries this year in the span of 9 months, and my reaction after every surgery got worse and worse to the point where I came seconds from dying after the last surgery. I realize how this could be a hazard for serving in the military, but I am willing to serve shore duty in the restricted line should that be an option.
by: Laura
on 11/3/2006 at 2:51:37 AM
While I was in boot camp, I struggled, the wintertime, I had muscle cramps, shin splints, my body slowly was falling apart. I got to Texas, for my AIT, and during BIVOUAC (sp) I was admitted to the hospital for dehydration, heat exhaustion, migraines.
I came home, I worked, was engaged, (married almost 7 yrs now) I went to Annual Training the following year in Louisianna....where I was diagnosed, after many days of being refused treatment at all (I was 1 of 2 combatmedics & had to stay out in the field with infantry)..I finally was told 2nd degree sun poisoning & poison Ivy..My hands were badly burned. Required a lot of treatment after I came home..weeks later I began uncontrollably vomiting. Anyways, I've had many surgeries, been to over 30 specialists, I'm diagnosed with Multiple Sclerosis, Fibromyalgia, CFS, and MANY other illnesses, including mercury & bismuth toxicity. A neurologist in Florida concluded I had also suffered a heat stroke, during my time in. I wanted so desperately to be in, a combatmedic, but, I wish I'd never gone along with my recruiter, in with-holding my MH. The previous recruiter from 1996 even recognised me once, before I shipped out, and my NG recruiter quickly changed the subject & started talking to him about a basketball game. Please Please, if you know you have MH or MHS, do NOT risk your health. It's been over 6yrs of numerous illnesses & treatments for me. I'm housebound now. But, have a wonderful husband, thank god for that. Please take care of yourselves. *Everyone.*
God Bless, Laura
by: Bruce
on 11/24/2006 at 3:51:01 PM
by: Sarah
on 9/30/2007 at 8:25:28 PM
by: Bruce
on 1/4/2008 at 5:52:05 AM
by: Sarah
on 1/4/2008 at 6:58:18 AM
by: Bruce
on 1/19/2008 at 4:54:35 PM
I have been through the PEB process and found fit. The funny thing is this; AR 40-501 which is the army reg for medical retention says that MH is deployable as long as you don't go to an extreme austure environment and the place of duty has access to full anesthetic services. In other words, I can deploy within the limitations of my profile. The thing I am up against is that the Adjutant General of Utah will not deploy anyone that is not 100% world-wide field deployable. There is a loophole in the regs that gives the Conviening Authority of the MMRB the ability to administratively seperate soldiers no matter what the PEB says. My only protection is that I will obtain 18 years of active service on 21 Jan 08. It is not possible by federal law for me to be administratively discharged without the approval of the Secratery of the Army. If you are not protected by the 18 year "sanctuary", you are SOL. I am scheduled to be MMRB'ed on 02 Feb 08. They will recommend seperation (which is not an authorized recommendation as per AR 600-60) and I will have to appeal to the general. Others have received the same recommendation with over 18 years but under 20 years and the general has overturned the board decision and allowed the soldier to obtain 20 years. The Physical Disability Evaluation System (PDES) is extremely unfair and sets service members up for failure. The only thing that we can do is petition congress to stop this loophool. Even if you do get retained, you will not be promotable. The other problem you will have is the VA has no ratable disability for MH, hence the PEB has nothing to compare it to for disability in the VASRD. The cards are stacked against military members that get diagnosed with MH and really, anything else. Hopefully, you have other conditions that will be ratable by the VA. Get tested for Sleep Apnea. Most people have it. It will get you booted but will give you a ratable disability. But you must do it while on active duty. It may even allow you to at least get a severance from the navy.
If your fitness reports stated that you were having problems because of your condition, you would have evidence that would convince the PEB to medically retire you. Without that evidence, you cannot convince the PEB. Then you face another administrative board that will seperate you unless you are protected by the "sanctuary" law like I am. I wish I could tell you how to avoid the process. But there is no way. Delay with a congressional complaint and see if you can find something else to reopen a PEB with something other than MH. Sorry, but the military does not like us MHS people.
If you have not been formally diagnosed with MH, I don't understand why they are pushing discharge. If you have not been diagnosed, see if your medical people will send you to the National Naval Medical Center in Bethesda, MD for testing. Also, contact Dr. Shiela Muldoon to see if they will push your command to send you for testing. If you are negative for MH, that will negate the push to seperate you. Let your congressman know that you haven't been tested if indeed you have not. That should help heads roll. Good luck!
by: Sarah
on 1/24/2008 at 1:01:02 PM
Read the DES posting you created... I just replied to that and covered most of the things you mentioned. I was diagnosed through muscle biopsy...then passed 5 year physical with MH in record, allowed to reenlist with MH in record, and cleared to go overseas with MH in record...even a letter from bethesda stating that I was unable to deploy. Medical providers repeatedly cleared me making me think that my career would continue. It wasn't until last year (here in Naples, Italy) that an anastesiologist caught it which started the whole process. The medical system took absolutely no repsonsibility for putting me in this predicament and did not take that into account during my PEB's. All it did was prove to them that I should be founf fit even though they knew my career would ultimately end because I only have 8 1/2 years in. That has probably been what has angered me the most. MH was throughout my record and numerous documents and in the end no one took any responsibility. The only word that I can use to describe it at this point is "disgusted". Anyways, I'll wrap this up but read my post I left you under the DES blog you made.